Stuck Under a Pile of Laundry…

Send help!

I know everyone has to deal with laundry. Well, I suppose there are folks who toss aside their just-doffed clothing with the expectation that the Laundry Fairy (be it mom, wife, butler, or actual magical nymph) will remove it, clean it, dry it, fold it, and return it to the drawer where it belongs. Ignoring those folks (two of whom live in this house) the rest of us have this issue on an on going basis.

Gina, are you seriously going to do a blog post on laundry?

Why not??

Well, you have only posted like 4 times in the past 4 months. Couldn’t you update us on something a little more–well, exciting??

All right! Okay! Enough about the 8 loads (count ’em!) I did today. We’ll talk about something else. I was on a roll, though. Laundry happens to be a big deal around here.

Oh! The magazine with my rant about that Combating Autism Act came out. Of course, they deleted all of my exclamation points and question marks and sighs and acks and it reads like a research paper–but it is in print. (Why do editors do that??? They get all excited about a piece and beg you to let them publish it and then strip it of everything that made it yours to begin with…) You can see it here. Scroll down to pages 12-13.

We are also on the cover–along with several pics I took during our last lobbying trip to DC. They put more of my shots inside around a piece written by another family that went on the same trip. It seems I am a photo-journalist, too! Whoda thunk?

And as long as I am “outing” myself by giving you a link to the magazine–which contains pics of me and my child along with my real name–I might as well add a picture to my profile and include a link to my other* website. Sure, some might see it as shameless self-promotion. They obviously don’t know me very well.

So, there you have it. I have morphed into a laundry-doing, homeschooling, photo-journalist, author, webmistress, blogging, life coach.

Heavy on the laundry.

*Y’all have had a link to on the sidebar for over a year. If you google “autism” and “iep” my little site will come up first–and I have done nothing to promote it evah… kah-cha!! Just goes to show what having a site sit there for 6 years can do. LOL

No seriously…

It has not been two months since my last post!

I have thought all sorts of incredibly important and insightful thoughts. Didn’t I post about my 36th birthday party, complete with band and chocolate mousse? No? Well, how about the incredible St Valentine’s weekend at the state park covered in snow? Not that either?? Okay, surely I told y’all all about my real, live, paying client that officially kicked off my life coaching business, right? Right???

Oh, guys, I am so sorry!

It seems the more I have to say the less able I am to drop by ye ole blog and say it.

Well, I will tell you that the blog has proven to be slightly beneficial for my writing career. (I didn’t even know I had or wanted a writing career!) My rant on the language surrounding the Combating Autism Act was picked up by a magazine. It seems that at least one other person thinks it is high time we think about the language we use when discussing diagnosis and disability. I won’t re-rant here. Just wanted to send out a woot! for the record.

And because this entry is officially all over the map and is begging for some sort of cohesiveness, I will end where I began:

As of right now, it has not been two months since my last post.

See y’all in June…

Oh, son, I am so, so sorry…

Berns Goes to WashingtonFrom the press release announcing the passage of the “Combating Autism Act”:

“This bill is a federal declaration of war on the epidemic of autism,” said Jon Shestack, co-founder of Cure Autism Now. “It creates a congressionally mandated road map for a federal assault on autism, including requirements for strategic planning, budget transparency, Congressional oversight, and a substantial role for parents of children with autism in the federal decision-making process.”

“By passing this landmark single-disease legislation, the House has recognized the daily plight of the thousands of families struggling every day with autism, and has once and for all acknowledged autism as a national healthcare crisis,” said Bob Wright, co-founder of Autism Speaks and chairman and CEO of NBC Universal.


The name of the act alone sent me into a rage but this???

“war on the epidemic of autism”????

“assault on autism”????

“daily plight”????

“families struggling”????

“once and for all acknowledged autism as a national healthcare crisis”????

All of this packed into TWO sentences!!! Oh. My. GOD!!!

And this stuff was said by family members of children with autism… not professionals or lobbyists.

These people are declaring war on my son!!! And their own children… they just don’t get it, do they??


I just want to go on the record saying that while I am all for finding accommodations that help folks participate in the world, offering medical treatment to those who need it, finding new ways to teach folks, and the like–I am *not* cool with using the same language we apply to terrorists and drug lords for legislation regarding our children!

Since when do we wage war on children?

It is not okay to forget that my children are just that–children.

The language we use is important! How often do children with diagnoses hear that there is “something wrong with them”?? How many times can they hear that without believing it?

Unfortunately, other people believe it, too. So, for the record, there is nothing “wrong” with my children. They are not the cause of some “daily plight” in my life. We get along just fine, thankyouverymuch.

I know that there are plenty of folks ready to heap ashes on my head for thinking this way. They will point to their children and say, “Look at my child! He bangs his head! He drools! He spreads poop on the walls! He has behaviors! You just don’t understand!!”

I do understand. I have seen it all. I have lived it all. And still I refuse to blame my children and lay the burden of my lack of happiness at their feet. I will not “wage war” on them. I will love them and care for them and fight for them and educate them and tell them over and over that they are awesome.

And I will declare war on anyone who suggests I do otherwise.

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